This memorial website was created in the memory of my little baby, Oliver Hughes who was born in United Kingdom on March 20, 2001 and sadly gave up his fight on January 27, 2006 at the age of 4. We will remember him forever. He was the most beautiful, funniest little charcter you'd have ever met! he thought hard, and was never affraid, the bravest boy in the world! Mummy's little chelsea boy! I love you baby xxx 


All about OLLIE!
Ollie was born 30 weeks premature, at Medway Maritime hosp in kent, weighing a huge 3lb! he was so cute, he was a strong little man! from birth oliver vomited,and things stemed from thier,Ollie never ate from a very  young age, he wouldnt take bottle feeds, so was fed via N.G.Tube,and he would still vomit,He had a form of inflammatory bowel desease, and a gut motility problem,high blood pressure,and a low immune system problem, he was frequently in hospital, for long periods,his bowel would paralyse and completely stop working, and his bowels would flareup, and he caught every infection going and would need hospitalising as everything else in his body would be affected,  i always thought my baby would get better, i used to search the internet for a reason and a cure.When ollie was 2years old he had an operation on his stomach which failed, and he also had a tube put into his stomach for easier feeding, things progressed in his last two years, he became more poorly,he used a wheelchair, and was frequently admited to hospital for longer periods, for flare ups in his bowel and many infections! But he was a strong one, and always got better, just as quick as he got sick!
This winter (2005) had been a bad one for ollie, having caught a phneaumonia which he just never realy got over and after catching many infections in florida whilst on holiday,where he spent two weeks in P.I.C.U and was transferred back to Medway maritime Hospital in kent, UK, by Air Ambulance (we had a whole private jet to ourself,just me an ollie, and two doc's and nurses) on christmas day! He then just seemed to deteriorate from thier, and sadly in january whilst in Great Ormond Street hospital he caught five serious infections,including E-Coli, Septeceamia,My-co plasma,Enterococcuss,Staphalococcuss aureas, through his picc line in which he was fed T.P.N, a way in which to get nutrition into him intrevenously, so we were bypassing his gut totally,  and he  just lost the fight,he was ventilated and on dialysis, but his heart was failing him, the toxins in his body were too high,and were taking over his body, his heart kept giving up but ollie fought on, and was resussitated 7times, but after that my poor baby was just too tired, and sadly he gave up on 27th jan, just 7 weeks before his 5th birthday! He shocked us all, even doctors, we all thought he would pull through, they just never realised how sick he realy was until too late. I am still in complete shock by it all, i just look around and think how can he be gone? i never dreamt that it was even a possibility to lose him, he was such a little fighter, and he just seemed to always get better. We found out after that he had an immune system problem ,and his central part of the brain, the hyperthalamus wasnt  doing the job it should  have been doing, and causeing his metabolic panel to fluctuate severely, we were told after oliver passed when more results came back that oliver was sadly going too pass away no matter what, his condition was progressive, i still feel he was taken too soon. i geuss, all diagnosed too late.....
I miss you so much baby, you were my whole world and still are, you will never be forgotten, and i'll love you more each day baby.
love you baby xx

we'v since just found out poppy has ehlers danlos syndrome, and autonomic dysfunction,sadly this is also what oliver had too, we never knew with oliver, but genetics have now found that he also had this.xx 


Happy Halloween








Oliver spent his last halloween in medway hospital dressed as dracula, he loved halloween, we put spiders and cobwebs on his bed and the door to his room, and painted spider posters! we went for a walk in his wheelchair around the ward and he shouted trick or treat!! scaring the nurses and doctors!

oliver 2004 halloween









LOVE YOU WITH ALL MY HEART OLIVER!!!
MISSING YOU SO MUCH ANGEL.
YOUR MY WORLD, MY HEART, MY SOUL

YOUR A BIG 7 NOW!!!!

Oliver never made it to 5, he passed just 7 weeks before his 5th birthday, and now hes 7 on 20th march, this will be his 2nd birthday in heaven! its hard to believe that he's gone, and to think he would be 7 now! and i bet he still would have been tiny, bless him! oliver hated being small, used to wish so hard to be big! and he would be very cross if you said he were small! we used to wind him up all the time! luckily he had a good sense of humour! my cousin Faye used to say" your just massive ollie, your huge! "
uncle Jim used to call him maggot! ( that was his nickname) he was my little man! nannys precious! mummys baby! he used to drive uncle blayne mad because he always wanted the playstaion on! auntie lisa thought he were a sparrow! and he was grandads football buddy! and uncle jordan used to go mad when he sneaked in his bedroom, or opened the door to his mates an told them he was out when he was realy in his bedroom!
you see he was just a little guy with a big sense of humour an a big heart! he always shared, and always gave kisses and hugs!

Oliver;- i was looking through your P.E bag today, and geuss what size it was?? 6-9months shorts ollie, an 9-12 month top! now that would have been something to laugh about at your 18th birthday! i always remember your 1st day at school you came home full of beans, i picked you up at school, and you came wheeling up the corridor grinning. i just want you to know ollie that i will always love you with all my heart, an im forever missing you baby!!

MERRY CHRISTMAS OLLIE

XMAS 04!
Ollie you've been gone nearly 3 yrs now, an every day just gets harder, i miss you so much, i cant believe you've been gone that long, so much has happend, an you've not been here for any of it. you've got your own little tree up at your garden, it looks cool! just wish you were here for christmas with us. It's poppys 2nd christmas and corals 1st, an you would have had such a great time helping them open thier pressies, i just feel your missing out so much! Every year santa used to pile up your presents so high they were higher than you! you'd have so many it would take hours, and you always played with each toy before opening the next, it was so annoying! your last christmas even was spent on a plane, a air ambulance flying back from florida, and then you spent christmas in medway hospital! but you still had fun, and on new yrs day at nanys we had another christmas day before you went into great ormond street where sadly you never left. i wish our last christmas could have been more special and that you were feeling much better, but you werent, you were very poorly. 
I just miss you ollie, an i always will, i know that its never gona change bubs, this pain will live with me until im with you again.
love you with all my heart , your mummy xxxx

What an amazing little man! love you loads baby x

Hey my baby, i miss you so much, love you loads, i wish these tears would stop falling and you could just come back, i want you back so bad! 
"when you took your first breath, i gave you life, When you took your last breath, you took my life!" because you was my life baby and still are! 
loveing you forever baby, mummy xxxx 

       
 
MUMMYS LITTLE STAR

just one more touch 
Please god, just one more touch,
A smell of his hair or a kiss on the cheek, 
Please god just let me here him speak,
Just three little words, do I ask too much?
Please god just let him call my name,
To play the playstation or change the game,
Please god, just one little hug,
The tiniest little cuddle, lighter than a bug, 
Please god am I asking too much,
Please, I beg you, just one more touch.

Oliver was a funny little thing, he always had a joke to crack, thought everthing was hilarious! he always shared things and was the champ at playstation! he loved to watch dvd's, and power rangers was his favourite! he loved going to the cinema, and loved funfair rides, the bigger, faster and scarier the better he thought! he was very precise about everything, was very clean and tidy and you would never see him dirty! he loved to colour pictures and paint but he would never let his hands get dirty! Football was his passion, he loved chelsea fc and had every footie kit since age 1! he argued everyday about what one to wear next and would change frequently! 

His illness never got him down, he never let it get in the way, and when in the summer people asked what the feeding tube in his stomach was for he would simply reply  "well it feeds me dosn't it!" he never hid his tube, i think he was quite proud of it! as he got older hes legs began to be a problem , walked less and less, and somedays he was completely  wheelchair bound! but this never botherd him, he learnt to do wheelies in it, an personalised it with his stickers that he got for being brave. He didnt realy have the energy to run round much and his joint and mescles gave him alot of pain, his cousin sam couldnt understand why he didnt ever want to play out with him, or run around but he just couldnt manage it! the doc's thought he'd never get clean in the day from nappies but he did even though his bowels were so bad, but he managed very well! towards the end this became a problem for him as he was too sick to go to the toilet so frequently, but he never complained! 

Oliver was a brave little boy, and will always be treasured so deeply in my heart, i will never love anyone like i love my ollie, he was so special, he owns my heart! 

I miss him so much, he was my life, my best friend, and him not being here with me is the most difficult thing i'll ever have to do, just carrying on without him by my side is, sharing my life is just not fair. i love him so much, it hurts to to think of the loss, But i have to carry on for him, to make him proud as he did me, you see ollie struggled on in life, with so much pain and illness, but with no complaints, so i too have too carry on for him, an be strong just as my boy was.

i love you my baby, your in my heart forever, you'll never be forgotten baby xx

love and hugs your mummy xxxxxx xxx xx xx xx xx

I just want to say thankyou to everyone who takes the time to read about my ollie, and for taking the time to write a tribute or light a candle for him, i check this site everyday, and its nice to know ollie is in your thoughts. 
Also a special thanks to all the doc's and nurses at G.O.S.H Including serena and Dr Hill who always listened and helped us through, the homecare team, Jacqui, and physio at medway and all at demelza house for ollies last days of rest!.... ETC...(the list is endless) for taking the time to always help ollie, you all made our lives that little bit easier!! love to you all, from me and ollie xxx 

A Special Child!

Their was a child born one day, 

A special child, some might say, 

He laughed, he smiled, he never cried,

But I couldn’t keep him forever, though I tried,

I wanted to wrap him, in my arms so tight,

Id never let go without a fight,

But his time had come, and he had too go,

Far too soon, and my tears, they flow,

He left me, with memories of love,

As he got his wings, and flew above,

He was here for a reason, still unknown,

But his love and memories, continues too grow,

 A guardian angel, for me too keep,

watching mummy, as she sleeps,

Always in my heart, and always by my side.

But my tears i do not hide!

Love you forever baby, love mummy x

Written for Ollie by mummy x

Checkout ollie photo's at 
bottom of page!!